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She was in pain for years. A rare condition was to blame.

She was in pain for years. A rare condition was to blame.

Summary

Jill Becher suffered from severe pain for three years without a clear diagnosis. She was eventually diagnosed with glossopharyngeal neuralgia, a rare nerve condition that causes intense pain in the throat, tongue, ear, and tonsils.

Key Facts

  • Jill Becher had ongoing sharp pain in her ear, throat, and under her tongue for three years.
  • Many doctors could not diagnose her condition during that time.
  • She was diagnosed with glossopharyngeal neuralgia, a rare disorder affecting 2 to 7 people per million.
  • This condition is caused by blood vessels pressing on the glossopharyngeal nerve, which controls sensation and movement in parts of the throat and tongue.
  • Glossopharyngeal neuralgia is sometimes called the "Suicide Disease" due to the intense pain it causes.
  • Diagnosis often requires an MRI to see the pressed nerve.
  • Treatment can include medication or surgery to relieve pressure on the nerve.
  • Becher had brain surgery to move the blood vessel, but it increased her pain before she received further treatment.
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