After son was born with a rare condition, father donates a kidney
Summary
Jaren Munari was born with branchio-oto-renal syndrome, a rare condition affecting his kidneys, ears, and neck. His father, Stephen Munari, donated one of his kidneys to Jaren in a surgery at NYU Langone Health to help treat Jaren’s chronic kidney disease.Key Facts
- Jaren was born with only one small kidney due to branchio-oto-renal syndrome, which affects about 1 in 40,000 people.
- The syndrome impacts kidneys, ears, and neck, and has no cure.
- Jaren experienced hearing loss and had surgery to repair neck fistulas caused by the condition.
- His kidney function worsened, reaching the fourth stage of chronic kidney disease by 2023.
- Kidney transplants from living donors, often family, account for about a third of U.S. kidney transplants.
- Stephen Munari was a match and donated his kidney to his son in a surgery on September 25, 2023.
- The surgery involved minimally invasive removal of the kidney from Munari and transplant into Jaren.
- The transplant will prevent Jaren’s kidney problems from continuing in the new kidney, significantly improving his health and quality of life.
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