My 6-Year-Old Couldn't Bear Clothes on Her Skin—Then Her Eyes Went Dark
Summary
A mother shares her experience with her 6-year-old daughter developing serious sensory problems and changes in behavior, which doctors initially misunderstood. After much searching, she found a possible explanation in PANS/PANDAS, a rare condition where the immune system affects the brain, but faced skepticism from medical professionals.Key Facts
- The daughter began to have trouble tolerating clothes on her skin and rejected many items of clothing.
- Her behavior changed with anxiety, obsessive worries, mood swings, and school refusal.
- She had sudden severe symptoms including distress, darkened eyes, and constant fear.
- The mother sought help from many doctors but got few answers or guidance.
- PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) is an immune-related condition that causes sudden brain inflammation and behavioral changes.
- PANS/PANDAS symptoms often look like psychiatric problems but are caused by immune dysfunction.
- The pediatrician dismissed the PANS diagnosis as too rare and discouraged pursuing it.
- There is stigma and controversy around PANS/PANDAS among some medical professionals.
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